American Psychological Association. Diagnostic and statistical manual of mental disorders. 5th ed. Arlington; 2013.
Volpe U, Tortorella A, Manchia M, Monteleone AM, Albert U, Monteleone P. Eating disorders: what age at onset? Psychiatry Res. 2016;238:225–7. https://doi.org/10.1016/j.psychres.2016.02.048.
Article
PubMed
Google Scholar
Jaffa T, Honig P, Farmer S, Dilley J. Family meals in the treatment of adolescent anorexia nervosa. Eur Eat Disord Rev. 2002;10(3):199–207. https://doi.org/10.1002/erv.464.
Article
Google Scholar
Sepulveda AR, Lopez C, Todd G, Whitaker W, Treasure J. An examination of the impact of "the Maudsley eating disorder collaborative care skills workshops" on the well being of carers: a pilot study. Soc Psychiatry Psychiatr Epidemiol. 2008;43(7):584–91. https://doi.org/10.1007/s00127-008-0336-y.
Article
PubMed
Google Scholar
Anastasiadou D, Medina-Pradas C, Sepulveda AR, Treasure J. A systematic review of family caregiving in eating disorders. Eat Behav. 2014;15(3):464–77. https://doi.org/10.1016/j.eatbeh.2014.06.001.
Article
PubMed
Google Scholar
Fox JR, Dean M, Whittlesea A. The experience of caring for or living with an individual with an eating disorder: a meta-synthesis of qualitative studies. Clin Psychol Psychother. 2017;24(1):103–25. https://doi.org/10.1002/cpp.1984.
Article
PubMed
Google Scholar
Zabala MJ, Macdonald P, Treasure J. Appraisal of caregiving burden, expressed emotion and psychological distress in families of people with eating disorders: a systematic review. Eur Eat Disord Rev. 2009;17(5):338–49. https://doi.org/10.1002/erv.925.
Article
PubMed
Google Scholar
Toulany A, Wong M, Katzman DK, Akseer N, Steinegger C, Hancock-Howard RL, Coyte PC. Cost analysis of inpatient treatment of anorexia nervosa in adolescents: hospital and caregiver perspectives. CMAJ Open. 2015. https://doi.org/10.9778/cmajo.20140086.
Anderson LM, Smith KE, Nunez MC, Farrell NR. Family accommodation in eating disorders: a preliminary examination of correlates with familial burden and cognitive-behavioral treatment outcome. Eat Disord. 2019:1–17. https://doi.org/10.1080/10640266.2019.1652473.
Coomber K, King, RM. A longitudinal examination of burden and psychological distress in carers of people with an eating disorder. Soc Psychiatry Psychiatr Epidemiol. 2013, doi:https://doi.org/10.1007/s00127-012-0524-7, A longitudinal examination of burden and psychological distress in carers of people with an eating disorder.
Treasure J, Schmidt U. The cognitive-interpersonal maintenance model of anorexia nervosa revisited: a summary of the evidence for cognitive, socio-emotional and interpersonal predisposing and perpetuating factors. J Eat Disord. 2013;1(1). https://doi.org/10.1186/2050-2974-1-13.
NICE. Eating disorders: recognition and treatment. In: NICE Guidance. 2017. https://www.nice.org.uk/guidance/ng69. Accessed 22/09/2020.
Treasure J, Nazar BP. Interventions for the Carers of patients with eating disorders. Curr Psychiatry Rep. 2016;18(2):16. https://doi.org/10.1007/s11920-015-0652-3.
Article
PubMed
PubMed Central
Google Scholar
Hibbs R, Rhind C, Leppanen J, Treausre J. Interventions for caregivers of someone with an eating disorder: a meta-analysis. Int J Eat Disord. 2015;48(4):349–61. https://doi.org/10.1002/eat.22298.
Article
PubMed
Google Scholar
Hibbs R, Magill N, Goddard E, Rhind C, Raenker S, Macdonald P, Todd G, Arcelus J, Morgan J, Beecham J, Schmidt U, Landau S, Treasure J, et al. Clinical effectiveness of a skills training intervention for caregivers in improving patient and caregiver health following in-patient treatment for severe anorexia nervosa: pragmatic randomised controlled trial. BJPsych Open. 2015;1(1):56–66. https://doi.org/10.1192/bjpo.bp.115.000273.
Article
PubMed
PubMed Central
Google Scholar
Sepulveda AR, Todd G, Whitaker W, Grover M, Stahl D, Treasure J. Expressed emotion in relatives of patients with eating disorders following skills training program. Int J Eat Disord. 2015;43(7):603–10. https://doi.org/10.1002/eat.20749.
Article
Google Scholar
Nickel K, Maier S, Endres D, Joos A, van Elst, LT, Zeeck, A. Systematic Review: Overlap Between Eating, Autism Spectrum, and Attention-Deficit/Hyperactivity Disorder. Front Psychiatr. 2019, doi:https://doi.org/10.3389/fpsyt.2019.00708, Systematic Review: Overlap Between Eating, Autism Spectrum, and Attention-Deficit/Hyperactivity Disorder.
Westwood H, Tchanturia K. Autism Spectrum disorder in anorexia nervosa: an updated literature review. Curr Psychiatr Rep. 2017;19(7):41. https://doi.org/10.1007/s11920-017-0791-9.
Article
Google Scholar
McManus S, Bebbington P, Jenkins R, Brugha T. Mental health and wellbeing in England: Adult Psychiatric Morbidity Survey 2014. NHS Digit. 2016. https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/556596/apms-2014-full-rpt.pdf. Accessed 22/09/2020.
Westwood H, Mandy W, Simic M, Tchanturia K. Assessing ASD in adolescent females with anorexia nervosa using clinical and developmental measures: a preliminary investigation. J Abnorm Child Psychol. 2018;46(1):183–92. https://doi.org/10.1007/s10802-017-0301-x.
Article
PubMed
Google Scholar
Brede J, Babb C, Jones C, Elliott M, Zanker C, Tchanturia K, et al. “For Me, the Anorexia is Just a Symptom, and the Cause is the Autism”: Investigating Restrictive Eating Disorders in Autistic Women. J Autism Dev Disord. 2020, doi:https://doi.org/10.1007/s10803-020-04479-3
Kinnaird E, Norton C, Stewart C, Tchanturia K. Same behaviours, different reasons: what do patients with co-occurring anorexia and autism want from treatment? Int Rev Psychiatry. 2019;31(4):308–17. https://doi.org/10.1080/09540261.2018.1531831.
Article
PubMed
Google Scholar
Postorino V, Gillespie S, Lecavalier L, Smith T, Johnson C, Swiezy N, Aman M, McDougle C, Bearss K, Andridge R, Vitiello B, Scahill L. Clinical correlates of parenting stress in children with autism Spectrum disorder and serious Behavioural problems. J Child Fam Stud. 2019;28(8):2069–77. https://doi.org/10.1007/s10826-019-01423-7.
Article
Google Scholar
Hall H, Graff C Maladaptive Behaviours of Children with Autism: Parent Support, Stress and Coping. Issues Comprehen Pediatr Nurs Volume 35, 2012 – Issue 3–4, doi:103109/01460862.2012.734210.
Zaidman-Zait A, et al. Examination of bidirectional relationships between parent stress and two types of problem behaviour in children with autism spectrum disorder. J Autism Dev Disord. 2014;44(8):1908–17. https://doi.org/10.1007/510803-014-2064-3.
Article
PubMed
Google Scholar
Zaidman-Zait A, Mirenda P, Duku E, Vaillancourt T, Smith IM, Szatmari P, Bryson S, Fombonne E, Volden J, Waddell C, Zwaigenbaum L, Georgiades S, Bennett T, Elsabaggh M, Thompson A, et al. Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder. Autism. 2017 Feb;21(2):155–66. https://doi.org/10.1177/1362361316633033.
Article
PubMed
Google Scholar
Myers B, Mackintosh V, Goin-Rochel R. (2009) “My greatest joy and my greatest heart ache”. Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives. Res Autism Spectrum Disord, Volume 3, Issue 3, July–September 2009 Pages 670–684 doi:https://doi.org/10.1016/j.rasd.2009.01.004, “My greatest joy and my greatest heart ache:” Parents’ own words on how having a child in the autism spectrum has affected their lives and their families’ lives.
Pisula, E (2011) Parenting stress in mothers and fathers of children with autism spectrum disorders: a comprehensive book on autism spectrum disorders 5, 87–106, 2011. doi:https://doi.org/10.5772/18507
Cadman T, Eklund H, Howley D, Hayward H, Clarke H, Findon J, Xenitidis K, Murphy D, Asherson P, Glaser K, et al. Caregiver burden as people with autism Spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom. J Am Acad Child Adolesc Psychiatry. 2012;51(9):879–88. https://doi.org/10.1016/j.jaac.2012.06.017.
Article
PubMed
Google Scholar
Hoefman R, Payakachat N, van Exel J, Kuhlthau K, Kovacs E, Pyne J, Tilfod JM. Caring for a child with autism spectrum disorder and parents' quality of life: application of the CarerQol. J Autism Dev Disord. 2014. https://doi.org/10.1007/s10803-014-2066-1.
Dey M, Castro RP, Haug S, Schaub MP. Quality of life of parents of mentally-ill children: a systematic review and meta-analysis. Epiemiol Psychiatr Sci. 2019;28(5):563–77. https://doi.org/10.1017/S2045796018000409.
Article
Google Scholar
Factor RS, Ollendick TH, Cooper LD, Dunsmore JC, Rea HM, Scarpa S. All in the family: a systematic review of the effect of caregiver-administered autism Spectrum disorder interventions on family functioning and relationships. Clin Child Fam Psychol Rev. 2019;22(4):433–57. https://doi.org/10.1007/s10567-019-00297-x.
Article
PubMed
Google Scholar
Howlin P, Goode S, Hutton M, Rutter M. Adult outcome for children with autism. J Child Psychol Psychiatry. 2004;45(2):212–29. https://doi.org/10.1111/j.1469-7610.2004.00215.x.
Article
PubMed
Google Scholar
Adamson J, Kinnaird E, Glennon D, Oakley M, Tchanturia K. Carers’ views on autism and eating disorders comorbidity: qualitative study. BJ Psych Open. 2020;6(3):e51. https://doi.org/10.1192/bjo.2020.36.
Article
Google Scholar
Devotta K, Woodhall-Melnik J, Pedersen C, Wendaferew A, Dowbor TP, Guilcher SJT, Hamilton-Wright S, Ferentzy P, Hwang SW, Matheson FI, et al. Enriching qualitative research by engaging peer interviewers: a case study. Qual Res J. 2016;16(6):661–80. https://doi.org/10.1177/1468794115626244.
Article
Google Scholar
Jorgensen CR, Eskildsen NB, Thomsen TG, Nielsen ID, Johnsen AT. The impact of using peer interviewers in a study of patient empowerment amongst people in cancer follow-up. Health Expect. 2018;21(3):620–7. https://doi.org/10.1111/hex.12655.
Article
PubMed
Google Scholar
Kinnaird E, Norton C, Tchanturia K. Clinicians’ views on working with anorexia nervosa and autism spectrum disorder comorbidity: a qualitative study. BMC Psychiatry. 2017;17(1):292. https://doi.org/10.1186/s12888-017-1455-3.
Article
PubMed
PubMed Central
Google Scholar
Saunders B, Sim J, Kingstone T, Baker S, Waterfield J, Bartlam B, Burroughs H, Jinks C, et al. Saturation in qualitative research: exploring its conceptualization and operationalization. Qual Quant. 2018;52(4):1893–907. https://doi.org/10.1007/511135-017-0574-8.
Article
PubMed
Google Scholar
Braun V, Clarke V. Using thematic analysis in psychology. Qual Res. 2006;3(2):77–101. https://doi.org/10.1191/1478088706qp063oa.
Article
Google Scholar
Greenwood N, Habibi R, Mackenzie A, Drennan V, Easton N. Peer support for carers: a qualitative investigation of the experiences of carers and peer volunteers. Am J Alzheimers Dis Other Dement. 2013;28(6):617–26. https://doi.org/10.1177/1533317513494449.
Article
Google Scholar
Hanly F, Torrens-Witherow B, Warren N, Castle D, Phillipou A, Beveridge J, Jenkins Z, Newton R, Brennan L, et al. Peer mentoring for individuals with an eating disorder: a qualitative evaluation of a pilot program. J Eat Disord. 2020;8(1):29. https://doi.org/10.1186/s40337-020-00301-8.
Article
PubMed
PubMed Central
Google Scholar
Fernandez-Aranda F, Casas M, Claes L, Clark Bryan D, Favaro A, Granero R, et al. COVID-19 and implications for eating disorders. Eur Eat Disord Rev. 2020;28(3):239–45. https://doi.org/10.1002/erv.2738.
Article
PubMed
PubMed Central
Google Scholar
Touyz S, Lacey H, Hay P. Eating disorders in the time of COVID-19. J Eat Disord. 2020;8(1):19. https://doi.org/10.1186/s40337-020-00295-3.
Article
PubMed
PubMed Central
Google Scholar
Waller G, Pugh M, Mulkens S, Moore E, Mountford VA, Carter J, Wicksteed A, Maharaj A, Wade TD, Wisniewski L, Farrell NR, Raykos B, Jorgensen S, Evans J, Thomas JJ, Osenk I, Paddock C, Bohrer B, Anderson K, Turner H, Hildebrandt T, Xanidis N, Smit V, et al. Cognitive-behavioral therapy in the time of coronavirus: clinician tips for working with eating disorders via telehealth when face-to-face meetings are not possible. Int J Eat Disord. 2020;53(7):1132–41. https://doi.org/10.1002/eat.23289.
Article
PubMed
Google Scholar
Fletcher-Watson S, Adams J, Brook K, Charman T, Crane L, Cusack J, Leekam S, Milton D, Parr JR, Pellicano E, et al. Making the future together: shaping autism research through meaningful participation. Autism. 2019;23(4):943–53. https://doi.org/10.1177/1362361318786721.
Article
PubMed
Google Scholar
Loomes R, Hull L, Mandy W. What is the male-to-female ratio in autism Spectrum disorder? A systematic review and meta-analysis. J Am Acad Child Adolesc Psychiatry. 2017;56(6):466–74. https://doi.org/10.1016/j.jaac.2017.03.013.
Article
PubMed
Google Scholar
Tchanturia K, Smith K, Glennon D, Burhouse A. Towards an improved understanding of the anorexia nervosa and autism Spectrum comorbidity: PEACE pathway implementation. Front Psychiatr. 2020;11. https://doi.org/10.3389/fpsyt.2020.00640.