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Table 1 Goals and strategies for prevention, early identification, and intervention

From: The legacy of hope summit: a consensus-based initiative and report on eating disorders in the U.S. and recommendations for the path forward

Goal

Strategy

Obstacles

Navigation

Prevention

Implement comprehensive health education programs that meet the National Health Education Standards (from the CDC) and include culturally-appropriate information that focuses on social-emotional development, enhancement of protective factors, and establishment of healthy peer norms

Use legislative efforts to enforce mandates and measurements for state education departments

Not every state can or will enforce/adopt the mandates due to:

Limited resources

Lack of recognition and prioritization of eating disorders

Lack of collaborative effort focused on early detection and prevention between the public and mental health disciplines

Nominate/identify a group that lobbies for these initiatives

Build grassroots support and understanding for the importance of implementing preschool through 12th grade comprehensive health education with built in assessments

Use other health indicators such as dietary patterns, diabetes, and mental illness rates as a way to build support for eating disorder screenings and implementation of preschool-secondary school comprehensive health education

Develop a mechanism for cross-discipline dialogue between public and mental health professionals using easy-to-implement, low cost programs (e.g., existing technology programs)a

Early identification and intervention

Recognize risk behaviors, at-risk statuses, early development of the illnesses in typical and atypical clinical presentations; and appropriately intervene and/or refer

Broadly disseminate evidence-informed content, strategies, and tools via NCEED, a nationally-recognized, not-for-profit organization with the ability to reach a diverse group of stakeholders

There will likely be difficultly in adequately reaching all stakeholders who might play a role in detection and early intervention. This is particularly true for primary care and frontline providers as they already are heavily burdened with screening a variety of mental and physical health conditions

Key partnerships with organizations will help promote strategy (e.g., ACCME; Boards of primary care specialties; the CDC; teachers’ unions; state education departments; NASMHPD; etc.)b

Implement developmentally, age, gender, race, culturally-appropriate screening practices in primary care and ambulatory care settings

Preschool—secondary school and public colleges and universities: Engage with legislative bodies to enact legislation that compels providers (and other stakeholders) at publicly-funded institutions to receive education and training on eating disorder detection and early intervention

Adults: Develop standards of practice for screening and early intervention and/or leverage the power of electronic medical records (e.g., Epic) to help providers engage in this process. For example, an electronic medical record/clinic workflow might include a brief screening for eating disorders which then triggers specific steps and/or referrals for patients at high riske

Lack of awareness or buy-in from primary care providers and other frontline clinicians who may see screening for yet another condition as an additional burden; viewing eating disorders as a low priority concern; prioritization of addressing “obesity problem” overeating disorders; and general lack of understanding about the screening process

Identify and use influencers and/or consensus building organizationsc,d

Include eating disorder-informed content into existing higher education and workplace wellness initiatives (e.g., employee-based programs that promote improving dietary and physical activity patterns, stress reduction, mindfulness practices, etc.)

Promote the cost-saving value of the wellness initiatives

Lack of awareness or buy-in from employers/companies, schools, and organizations

Use influencers to encourage change from within corporate governance

Sell as a quality improvement in the workplace (lower cost associated with health insurance; increased importance in value-based care, etc.)

Highlight the cost to employers from absenteeism, turnover, etc. of undiagnosed or untreated eating disorders

  1. aImportant Contacts: Department of Health and Human Services; National Eating Disorders Association; Eating Disorders Coalition; State Boards of Education; Superintendent’s Associations; and Parent Teacher Associations
  2. bImportant Contacts: National Center of Excellence for Eating Disorders; National Eating Disorders Association; Academy for Eating Disorders; International Association of Eating Disorder Professionals; Eating Disorder Coalition; State Medical Boards
  3. cAs with many other points in this document, more work will need to be completed to determine how to make this happen
  4. dImportant Contacts: Thinktank of people who represent various stakeholder groups and have knowledge in these types of processes (e.g., smoking cessation; depression screening, etc.)
  5. eTo this end, NCEED was recently granted $300,000 in supplemental funding by the Substance Abuse and Mental Health Services Administration (SAMHSA); that provided the initial funding to establish NCEED to develop a primary care-specific protocol for detection and management of eating disorders with an eye toward leveraging the power of electronic medical record systems. This protocol will equip frontline clinicians with the necessary training and tools to engage in early detection and intervention for eating disorders
  6. ACCME Accreditation Council for Continuing Medical Education, CDC Centers for Disease Control, NASMHPD National Association of State Mental Health Program Directors, NCEED National Center of Excellence for Eating Disorders