Mean score ± SD | Patients /moth.b | Patients./fath.c | Moth./fath.d | ||||||
---|---|---|---|---|---|---|---|---|---|
General experiences with the treatmenta | Patients N = 34 | Mothers N = 40 | Fathers N = 20 | P-valuee | Effect sizef | P-valuee | Effect sizef | P-valuee | Effect sizef |
Mean general experiences with treatment score (item 1–12) | 3.2 ± 1.0 | 3.7 ± 0.7 | 3.9 ± 0.5 | 0.001 | 0.6 | 0.029 | 0.9 | 0.457 | 0.3 |
1. Did you have confidence in the clinicians’ professional competence? | 3.3 ± 1.4 | 4.1 ± 0.8 | 4.2 ± 0.5 | 0.006 | 0.7 | 0.117 | 0.9 | 0.718 | 0.1 |
2. Did the clinicians talk to you in a way that was easy to understand? | 3.8 ± 1.0 | 4.4 ± 0.7 | 4.1 ± 0.6 | 0.001 | 0.7 | 0.236 | 0.4 | 0.579 | 0.5 |
3. Did you get sufficient information about the illness/diagnosis? | 3.6 ± 1.1 | 3.9 ± 0.9 | 3.9 ± 0.8 | 0.008 | 0.3 | 0.242 | 0.3 | 0.651 | 0.0 |
4. Did you perceive the treatment as suited to your situation? | 2.9 ± 1.4 | 3.5 ± 1.2 | 3.9 ± 0.9 | 0.009 | 0.5 | 0.034 | 0.8 | 0.311 | 0.4 |
5. Were you involved in decisions regarding your/your child’s treatment? | 2.9 ± 1.2 | 3.7 ± 1.1 | 3.5 ± 0.9 | 0.038 | 0.7 | 0.191 | 0.7 | 0.529 | 0.3 |
6. Did you perceive the institution’s work as well organized? | 3.4 ± 1.3 | 3.9 ± 1.0 | 3.9 ± 0.7 | 0.055 | 0.4 | 0.223 | 0.5 | 0.632 | 0.0 |
7. Was the staff aware of siblings’ situation?g | 2.4 ± 1.2 | 3.2 ± 1.0 | 3.7 ± 0.8 | 0.003 | 0.7 | 0.120 | 1.3 | 0.510 | 0.6 |
8. Did the staff collaborate well with the parents? | 3.4 ± 1.4 | 4.1 ± 0.8 | 4.1 ± 0.6 | 0.021 | 0.6 | 0.296 | 0.6 | 0.632 | 0.0 |
9. Did the staff collaborate well among themselves? | 3.6 ± 1.2 | 4.0 ± 0.9 | 4.0 ± 0.5 | 0.131 | 0.4 | 0.312 | 0.4 | 0.458 | 0.0 |
10. Did the staff cooperate well with other public services? | 3.2 ± 1.1 | 3.4 ± 1.0 | 3.8 ± 0.7 | 0.282 | 0.2 | 0.082 | 0.7 | 0.111 | 0.5 |
11. Did you perceive that the institution prepared you for the time after discharge? | 2.6 ± 1.4 | 3.0 ± 1.1 | 3.3 ± 0.9 | 0.142 | 0.3 | 0.468 | 0.6 | 0.718 | 0.3 |
12. Overall, was the help and treatment you/ your child received satisfactory? | 2.9 ± 1.3 | 3.7 ± 1.0 | 4.1 ± 0.9 | < 0.001 | 0.7 | 0.001 | 1.3 | 0.333 | 0.6 |
Mean score on overall benefit of the treatment for family members (a-c)h | 3.1 ± 1.0 | 3.3 ± 1.1 | 3.5 ± 1.1 | 0.019 | 0.2 | 0.046 | 0.4 | 0.913 | 0.2 |
a) Overall benefit for the patient | 3.0 ± 1.1 | 3.6 ± 1.1 | 3.6 ± 1.2 | < 0.001 | 0.5 | 0.016 | 0.5 | 0.333 | 0.0 |
b) Overall benefit for the parents | 3.5 ± 1.1 | 3.6 ± 1.1 | 3.7 ± 1.0 | 0.147 | 0.1 | 0.795 | 0.2 | 0.331 | 0.1 |
c) Overall benefit for siblingsg | 2.7 ± 1.3 | 2.4 ± 1.3 | 3.0 ± 1.2 | 0.843 | 0.2 | 0.457 | 0.2 | 0.305 | 0.5 |
Mean score on benefit of 19 different treatment elementsg | 3.0 ± 0.9 | 3.4 ± 0.9 | 3.4 ± 0.8 | 0.042 | 0.4 | 0.218 | 0.5 | 0.128 | 0.0 |