Table 6 Statements strongly rejected by both professionals and people with lived experience
From: Development of guidelines for giving community presentations about eating disorders: a Delphi study
Professionals | Lived Experience | |||
|---|---|---|---|---|
Inclusion (%) | Helpful (%) | Inclusion (%) | Helpful (%) | |
Format of a presentation | ||||
Authors should... present to single sex groups (i.e. female-only or male-only audiences (12–17) | 9.09 | 18.18 | 21.43 | 28.57 |
Authors should... present to single sex groups (i.e. female-only or male-only audiences (18+) | 0.00 | 9.09 | 20.00 | 20.00 |
Presentations should not... include media reports, drama presentations or case studies about eating disorders, as they may trivialise or glamorise the illness (12–17) | 18.18 | 18.18 | 21.43 | 35.71 |
Presentations should not... include media reports, drama presentations or case studies about eating disorders, as they may trivialise or glamorise the illness (18+) | 18.18 | 18.18 | 20.00 | 33.33 |
Presentations should not... invite speakers with lived experience who are peers known to the audience (12–17) | 36.36 | 10.00 | 28.57 | 21.43 |
Presentations should not... invite speakers with lived experience who are peers known to the audience (18+) | 27.27 | 10.00 | 26.67 | 20.00 |
Lived experience speakers – Do no harm | ||||
LE speakers should not... make reference to specific treatment facilities or providers (12–17) | 36.36 | 20.00 | 21.43 | 28.57 |
LE speakers should not... make reference to specific treatment facilities or providers (18+) | 36.36 | 20.00 | 20.00 | 20.00 |
Presentation content – Multimedia and images | ||||
Presentations should not... mention pro-eating disorder websites (18+) | 27.27 | 10.00 | 26.67 | 26.67 |
Presentations should not... include movies depicting persons with eating disorders (12–17) | 27.27 | 10.00 | 35.71 | 35.71 |
Presentations should not... include movies depicting persons with eating disorders (18+) | 18.18 | 10.00 | 33.33 | 26.67 |
Presentation content – Risk factors/causes | ||||
Authors and presenters should not… describe eating disorders as caused by biogenetic/genetic factors because this may reinforce the idea that an eating disorder is an unchangeable characteristic of a person. (12–17) | 20.00 | 22.22 | 30.77 | 23.08 |
Authors and presenters should not… describe eating disorders as caused by biogenetic/genetic factors because this may reinforce the idea that an eating disorder is an unchangeable characteristic of a person. (18+) | 20.00 | 22.22 | 21.43 | 21.43 |
Presentations should not… suggest that psychosocial factors are more controllable than biogenetic factors in the development of an eating disorder (12–17) | 30.00 | 22.22 | 38.46 | 30.77 |
Presentations should not… suggest that psychosocial factors are more controllable than biogenetic factors in the development of an eating disorder (18+) | 30.00 | 25.00 | 35.71 | 28.57 |
Presentations should... describe eating disorders as caused by biogenetic risk factors because this may reduce personal blame for the development of an eating disorder. (12–17) | 30.00 | 33.33 | 30.77 | 30.77 |
Presentations should... describe eating disorders as caused by biogenetic risk factors because this may reduce personal blame for the development of an eating disorder. (18+) | 30.00 | 33.33 | 35.71 | 35.71 |
Authors and presenters should…explain that holding people responsible for their eating disorder behaviour may assist people in their efforts to recover (12–17) | 30.00 | 33.33 | 15.38 | 15.38 |
Authors and presenters should…explain that holding people responsible for their eating disorder behaviour may assist people in their efforts to recover (18+) | 30.00 | 33.33 | 21.43 | 21.43 |
Presentation content - Recovery | ||||
Authors and presenters should not… use stories of people who fought their illness alone (12–17) | 36.36 | 30.00 | 15.38 | 15.38 |
Authors and presenters should not… use stories of people who fought their illness alone (18+) | 18.18 | 11.11 | 0.00 | 7.69 |
Presentations should not... reference specific treatment facilities or providers (12–17) | 9.09 | 30.00 | 7.69 | 0.00 |
Presentations should not... reference specific treatment facilities or providers (18+) | 9.09 | 30.00 | 7.69 | 0.00 |
Special populations – Children under 12 years | ||||
Presentations about eating disorders should not... be given until high school (children aged 12 and up) | 27.27 | 30.00 | 14.29 | 7.14 |
Special populations – athletes | ||||
Authors should… be aware that information about the causes, symptoms, and detrimental effects of eating disorders should only be presented to persons who care for people at risk (e.g. parents, staff, coaches) (12–17) | 27.27 | 20.00 | 15.38 | 15.38 |
Authors should… be aware that information about the causes, symptoms, and detrimental effects of eating disorders should only be presented to persons who care for people at risk (e.g. parents, staff, coaches)(18+) | 18.18 | 20.00 | 21.43 | 21.43 |