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Table 2 Sociodemographic, clinical, and medical characteristics of the eating disorder subset of the cohort ( n= 685)

From: The HOPE (Helping to Outline Paediatric Eating Disorders) Project: development and debut of a paediatric clinical eating disorder registry

  N Eating disorder clinic cohort (N = 685)
Sociodemographic characteristics, total sample   
Sex (female), n (%) 685 641 (93.6%)
Age, M ± SD [range] 685 14.7 ± 1.6 [8.7,17.9]
 <12 yrs   45 (6.6%)
 12-14 yrs   146 (21.3%)
 14-16 yrs   374 (54.6%)
 >16 yrs   120 (17.5%)
Rural residence, n (%) 663 115 (17.3%)
Family history, total sample   
Eating disorder history, n (%) 572 151 (26.4%)
Physical features, total sample   
BMI z score, M ± SD [range] 636 −1.41 ± 1.48 [−8.17,2.13]
Weight loss1, n (%) 538 514 (95.5%)
< 85% of expected height/weight, n (%) 577 355 (61.5%)
Amenorrhoea, n (%) 659 280 (42.5%)
 Primary   30 (4.6%)
 Secondary   250 (37.9%)
Comorbid psychopathology, total sample   
CDI T-score ≥ 65, n (%) 262 127 (48.5%)
MASC T-score ≥ 65, n (%) 264 89 (33.7%)
Current suicidal ideation, n (%) 271 114 (42.1%)
Current self-harm, n (%) 493 134 (27.2%)
Eating disorder features, total sample   
Duration of illness (months), median ± IQR [range] 635 8 ± 5–12 [1,120]
Diagnosis, n (%) 685  
 Anorexia nervosa   172 (25.2%)
  Restricting   141 (20.6%)
  Binge/purge   31 (4.5%)
 Bulimia nervosa   48 (7.0%)
  Purging   45 (6.6%)
  Non-purging   3 (0.4%)
 Eating disorders not otherwise specified   465 (67.9%)
Child version: EDE global, M ± SD [range] 675 3.07 ± 1.57 [0.0,5.95]
Parent version: EDE global, M ± SD [range] 598 2.94 ± 1.29 [0.0,6.93]
Objective binge eating, n (%) 685 129 (18.8%)
Purging, n (%) 685 237 (34.6%)
Self-induced vomiting, n (%) 685 195 (28.5%)
Laxative misuse, n (%) 685 49 (7.2%)
Diuretic misuse, n (%) 685 5 (0.7%)
Intense exercise to control shape/weight, n (%) 685 307 (44.8%)
Fear of weight gain (≥ 4 on EDE item), n (%) 673 479 (71.2%)
Eating disorder features, those with behaviour present   
Objective binge eating, median ± IQR [range] 129 10 ± 3–19 [1,168]
Purging 237 20.00 ± 5–33.5 [1,308]
Self-induced vomiting, M ± SD [range] 195 27.17 ± 32.07 [1,224]
Laxative misuse, M ± SD [range] 49 22.29 ± 47.13 [1,280]
Diuretic misuse, M ± SD [range] 5 50.40 ± 23.43 [28,84]
  1. Discrepancies in available N on the CDI and MASC reflect the later introduction of these measures. Values are n (%) unless otherwise indicated. Median and IQR are presented for skewed variables. BMI body mass index, CDI Children’s Depression Inventory, EDE Eating Disorder Examination, MASC Multidimensional Anxiety Scale for Children. 1Lower weight at intake than parent- or self-reported maximum ever weight.